Everything starts with a small group of friends and relatives. At the beginning everybody's response to your initiative is minimum: affected families, doctors, institutions and civil society. Nobody seems to be very interested in a problem that only affects a small group of people and that apparently has no solution (how else could it be, if nobody looks for it?). Nevertheless we were able to set off.

We gave the association a great boost when we asked for "conscience objectors" (in Spain it is at the moment compulsory for young men to choose between doing the military service or a time equivalent social service, which is called "conscience objection"). With them it was easy to accomplish a lot of ideas that only existed until then in our heads, and their work made them became reality. They sometimes make you forget you can not move. With their help you can go to conferences, go abroad, have an interview with politicians, sail... they are the muscles that we have useless, the hours of work that our relatives can not give to us, and the joy that you loose when diagnosed with ALS.

You realise that the real problem is ignorance. During more than 125 years every affected person was always the first one, and had to discover by himself every new aspect of the disease, which therefore limited the amount of problems that he/she was able to solve out. When the person dies, the family only wants to forget everything as soon as possible. Then the experience gets lost and the new cases start from scrap. Others prefer to ignore everything in order not to suffer and avoid to being mixed up in anything that could remind them of what it is.

Every social project starts off from an idea and an individual intention that is being assumed by other persons with same interests. And all together, in an organised way, compose a new reality that nolonger belongs to anyone in specific, which changes the situation that initially gave them the impulse to start off.

This is what day to day we intend to do in ADELA C.V. ALS is a hard reality that is necessary to modify until making it disappear. To do so we need everyone to look inside for the best of him/herself, the truest part, and put it, with all the strength that he or she can, to the service of this fight, adding to it his/her joy, positive spirit and solidarity. Only in this way will it be possible, in a near future, to defeat ALS and its dramatic consequences. I hope this moment will be soon.